As per the NORD (National Organization of Rare Disease) website: The main objective of Rare Disease Day is to raise awareness among the general public and decision-makers about rare diseases and their impact on patients’ lives.
Travel, whether for vacation or business, always seems to involve a degree of stress but there are extra considerations for kidney patients living with dialysis. Here’s a checklist to help with travel planning to help things run more smoothly before you leave home, After all, vacations are supposed to be enjoyable and promote a feeling of calm serenity!
We applaud your efforts to deliver on President Trump’s Advancing American Kidney Health Initiative. You have stated that the U.S. Department of Health and Human Services (HHS) will reform regulations so that fewer Americans suffer kidney failure, more options are available for dialysis patients, and more organs are available for transplant.
February 14th is National Donor Day. It’s also St. Valentine’s Day. Most everyone associates the heart with Valentine’s Day – because the heart is the organ that symbolizes love. In reality, though, every organ, every tissue, every single part of our miraculous bodies symbolizes the greatest of all gifts: LIFE!
Potassium is a very important mineral. It plays a key role in controlling the function of nerves and muscles, particularly the heart. Potassium is found in many foods, especially many fruits and vegetables. It has been shown to lower blood pressure and may also have benefits such as reducing the risk of strokes.
For many seniors, thinking about the future can be extremely stressful. There are many financial considerations to think about, from how you’ll pay for potential medical bills to covering the costs of long-term care. Not only that, you might need to start thinking about end-of-life preparations, especially if you have a large estate…
It was 2014, I had just completed my first year of dialysis. I was in my chair at the Fresenius Medical Care Clinic in Crown Point, Indiana, when my doctor, Dr. Vavilala (Dr. V) approached me. He mentioned to me that the ESRD Network 10 was holding a contest, and he felt that if I applied and wrote an essay, I’d win.
Tampa, FL – The American Association of Kidney Patients (AAKP), America’s oldest and largest independent, patient-led kidney advocacy organization, has announced recipients of its 2020 Medal of Excellence. The award is one of the Association’s highest honors for kidney healthcare professionals and designed to elevate local, national and international figures who have been at the forefront of advancements in kidney care and patient empowerment.
Rilynn was diagnosed with Autosomal Recessive Polycystic Kidney Disease (ARPKD) in utero when I was 20 weeks pregnant, deemed un-survivable. At this point I’ve lost count at the number of times we’ve been told she wouldn’t survive. From a 95-day Neonatal Intensive Care Unit stay to beating stage IV liver cancer just last month, you could say she’s a living breathing miracle.
