By Suzanne RuffWhen my sister collapsed in critical condition because her kidneys had failed, I offered to become a living kidney donor for her. I immediately regretted my offer. It was sixteen years ago. I had never had surgery.
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Our Blog
AAKP strives for change by promoting and celebrating the importance of kidney health for patients across the country. This blog will allow you to connect with experts, researchers, staff and volunteers surrounding our ongoing advocacy for healthy kidneys.
PKD Awareness Day 2020
By Jim Myers, AAKP BOD/AmbassadorHow does one normally become aware of Polycystic Kidney Disease? In my case, I became aware through my Father. I’m 62 now. This is about the same age my Dad was when he first told me he had PKD. He had been to the Mayo Clinic for a checkup, and he reported to me that he had “kidney disease.
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Fluid Balance and the Power of Plants
By Kristi Edwards, RDNSummer is HERE, and it is hot…hot…hot! And while some may reach for a Route 44 beverage after being in the hot sun all day, individuals with kidney disease think twice. With impaired kidney function, drinking a lot of fluid can cause some unwanted, and even harmful, side effects.
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Innovator Series: Aurinia Pharmaceuticals, Inc.
By Robert Huizinga, Ph.D., R.N., CNeph©, Executive Vice President, Corporate Development and Neil Solomons, MD, Chief Medical Officer at Aurinia Pharmaceuticals1. Tell us about your first experience with a kidney patient, personal or professional, and what impressions that left on you as a fellow human being. RH:
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How Are We Going to Open Up Safely?
By Stephen Z. Fadem, MD, FASN, Chairman, Medical Advisory Board AAKPIntroduction The COVID-19 pandemic has taken the world by surrise and been costly in terms of life. As of May 27, 2020, there were over 100,000 deaths related to COVID-19 in the United States. By June 8, another 11,700 had died (Source: https://coronavirus.jhu.edu/map.html)
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Of Presidents, Policies, & Patients
By Paul T. Conway, AAKP Chair of Policy and Global Affairs and immediate past president and Edward V. Hickey III, U.S.M.C.
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20 TRANSPLANT ROUND TABLE GROUPS ASK CONGRESS TO PASS IMMUNO DRUG COVERAGE
RE: Recent CMS and CBO Actions Should Propel Action on S.3353, the Comprehensive Drug Coverage for Kidney Transplant Patients Act, During the 116th Congress Dear Majority Leader McConnell, Minority Leader Schumer, Chairman Grassley and Ranking Member Wyden:
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Global Summit Perspective: Maria Eugenia
For 2ND ANNUAL GLOBAL SUMMIT: GLOBAL KIDNEY INNOVATIONS – EXPANDING PATIENT CHOICES & OUTCOMES: Dear AAKP and all members,I have been following AAKP's activities for 30 years, reading the information on kidney disease, which I've been able to share among the patients here in Argentina.
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Book Review: The Pretend Friend Association – Parts One to Four by Hannah Reimers
Self-Published ISBN: 9781520202839 Review by: James Myers, AAKP BOD and Ambassador MEDICAL INFORMATION FOUND ON: www.nephcure.org & www.kidney.org Disclaimer: This book was written by a patient, not a doctor. Please consult with a physician if you have questions about your health.This is a great book!
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Kent’s Kidney Stories with AAKP Ambassador Risa Simon
During this episode of Kent’s Kidney Stories, AAKP BOD member/ambassador Kent Bressler speaks with fellow ambassador Risa Simon on the tenth anniversary of her successful kidney transplant.On June 8, 2010, Risa received her transplant from a living donor, which was considered preemptive, and therefore allowed her to bypass dialysis.
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